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|Description:||Project SEARCH is committed to supporting health and fitness education during the transition to employment. Accordingly, Project SEARCH partnered with UnitedHealthcare last year to provide Project SEARCH sites with Health Matters: The Exercise and Nutrition Health Education Curriculum for People with Developmental Disabilities. More recently, we were awarded a grant from the Ohio DD Council to study the use of the Health Matters curriculum in the context of Project SEARCH. As a first step, we surveyed Project SEARCH Instructors on their experience with the Health Matters curriculum and other health and fitness activities. The purpose was to learn about both the successes and obstacles that instructors encountered. The results of that survey will be presented here, and we plan to gather additional information from members of the audience in an informal focus group discussion. Ultimately, we plan to create and test a clear set of guidelines for integrating the Health Matters curriculum into Project SEARCH in a manner that will optimize learning of health and fitness principles without interfering with the primary Project SEARCH goal of competitive employment.|
|PRESENTERS||Maryellen Daston, PhD, Program Specialist, Cincinnati Children’s Hospital, Cincinnati, OH. Maryellen is a technical writer with a background in biomedical research. Prior to her current position with Project SEARCH, she was involved with research in the field of developmental neuroscience. In her current position, Maryellen works with the Project SEARCH central administration team at Cincinnati Children’s Hospital Medical Center. Maryellen manages the Project SEARCH database and is responsible for editing and writing content for the Project SEARCH website, articles for professional journals, and other communications. She is also involved with researching funding opportunities, writing grant proposals, and overseeing research related to Project SEARCH. In addition, Maryellen co-authored the book on the history, philosophy, and practices that define the Project SEARCH model, “High School Transition that Works: Lessons Learned from Project SEARCH”, Paul H. Brookes Publishing Co.|
|: Play recording (51 min)
|Date and time:||Thursday, February 15, 2018 2:00-3:00 pm (Eastern Time)|
|Play Recording (53 min)
|Date and time:||Thursday, September 28, 2017 2:00-3:00 pm (Eastern Time)|
This session will provide a refresher on the requirements in the ADA and ABA Accessibility standard for Hospitals and Long-Term Care facilities. The presenters will provide an in-depth review of the standards and design challenges in long-term care settings, including highlights from recent research. Additionally, strategies for success in the field that both comply with the standard and meet the needs of older adults and their caregivers will be discussed. This is a joint session presented by the Access Board and the AIA Codes and Standards Committee. Session participants are encouraged to submit questions in advance.
18th Annual Chronic Illness and Disability Conference: Transition from Pediatric to Adult-based Care
AUCD is proud to support the online broadcast of Baylor College of Medicine’s 18th Annual Chronic Illness and Disability Conference.
All MCH Training Programs and UCEDDs are invited and encouraged to participate remotely by hosting a live stream of this conference for trainees, faculty, staff, families, and others at your center or program. Eligible broadcast sites include MCH training programs, UCEDDs, and Title V programs. This is an excellent opportunity for your trainees and staff to gain in-depth coverage of a range of transition issues at a very low cost of $150 per site.
An Engaging Agenda
Hosted by Baylor College of Medicine and available nationwide through an AUCD-sponsored live broadcast, this year’s conference is shaping up to be a valuable resource for the AUCD network and beyond. Register as a broadcast site in order to:
- Listen to Toronto Children’s Hospital share about the role that social media and digital communications can play in engaging transition-aged youth
- Participate in a breakout session on Supported Decision Making
- Learn about one LEND alumni’s work toward educate others on healthy sexuality for people with I/DD
- Earn CME and CNE Credits, Social Work CEUs, and PT and OT CCUs without leaving the office
… and much more!
- View a PDF flyer about the remote broadcast.
- Learn the details about being a broadcast site.
- Register as a broadcast site using this form. DEADLINE MONDAY, SEPTEMBER 25, 2017
To register as a broadcast site, contact Baylor College of Medicine, Office of Continuing Medical Education, at 713-798-8237 or e-mail firstname.lastname@example.org for instructions. For registration questions, contact Baylor’s Cicely Simon. To speak with someone at AUCD about this event, contact Sarah DeMaio.
Why We Participate
“Minnesota LEND partners with Gillette Lifetime Specialty Clinic in co-hosting the live broadcast of this conference …to learn about evidence-based practices in the critical need area of healthcare transition. Gillette staff members were very excited about this opportunity to ‘attend’ Baylor’s conference at their work place. We hope to increase this type of collaborative learning each year for our clinical partners and trainees.”
– Rebecca Dosch-Brown, MN LEND Training Coordinator
“Baylor does an excellent job of addressing the task of facilitating adolescent transition as youth learn to navigate health care, post-secondary work or school, and independent living. The mixture of national and local presenters who come from clinical, research, policy, advocacy, and patient perspectives provide a well-rounded presentation of the realities of transition. The annual conference jumps starts our trainees’ knowledge and skill development regarding transition. It allows us to introduce a wide array of issues that would take us much longer to do with our own content development. We are grateful that we are able to gain so much with a relatively small investment on our part.”
– David Deere, Arkansas Regional LEND Training Director
“WI LEND program works with our state Youth Health Transition Hub to host at least 2 sites in Wisconsin – Madison and Milwaukee. LEND trainees participate as they are able, but are a small part of the audience. We have mostly providers (nurses, SW, MD, other health professionals), our MCH PPC partners and trainees, and just a few families, who come to the broadcast.”
-Anne Harris, WI LEND Director
Source: AAIDD Webinar
August 22, 2017 , 4:00 p.m – 5:00 p.m. ET
Erin Riehle RN, MSN, NEA-BC is the Senior Director of Disability Services and Project SEARCH. She will focus on describing Project SEARCH, which is an employment and transition program that has received national recognition for practices started under Erin’s leadership.
July 13th, 2-2:45pm ET. Registration is free and required.
This presentation will review the provisions of the Americans with Disabilities Act Amendments Act (ADAAA) pertaining to disclosure of disability in the workplace and examine the considerations that workers with disabilities must make in deciding whether to disclose. Research findings from several recent studies of the disclosure decision will be presented.
Presented by: Lieke van Heumen, PhD
This webinar will discuss emerging research and practice in supporting social networks of adults aging with intellectual disabilities. After a brief introduction on aging in this population, the webinar will discuss the role of social relations in later life and address the state of knowledge regarding the social support networks of older adults with intellectual disabilities. The webinar will provide a discussion of the role of support services in promoting informal networks and conclude with an exploration of the use of social network mapping and life story work in person-centered planning.
Lieke van Heumen is a postdoctoral research fellow at the Department of Disability and Human Development, University of Illinois at Chicago. Lieke’s primary research interest is the intersection of aging and disability with a focus on supports that contribute to aging well. She believes retrieving the lived experiences of older adults with disabilities by means of inclusive and accessible research methods is key to assuring the meaningful engagement of adults with disabilities in the research process.