Families

The Role of Families As Caregivers & Guides for Whole Health & Wellness

Health care providers often focus on serving either children or adults. While this focus may mean more tailored approaches to care for the individual patient, it may be a missed opportunity to address the role of family on health outcomes. Source: Multi-Generational Approach to Care Overview  Taking a multi-generational approach involves changing the focus of how …

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6 Steps to Creating a Culture of Person and Family Engagement in Health Care

Source: 6 Steps to Creating a Culture of Person and Family Engagement in Health Care This Planetree PFE Culture Change Toolkit is designed for health care practices participating in the Transforming Clinical Practice Initiative, but will be of value to any practice seeking strategies to improve person and family engagement. It provides guidance on creating …

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Breaking Stereotypes: Spotlight on Male Family Caregivers

In the United States, family caregivers are the backbone for the delivery of supportive services for individuals with a chronic, disabling, or serious health condition. 40 percent of family caregivers of adults are men—which equates to 16 million male family caregivers in the United States. Source: Breaking Stereotypes: Spotlight on Male Family Caregivers They identify, arrange, …

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Research Brief: Family Caregiver Support for People with IDD

The 2010 Family and Individual Needs for Disability Support Survey (FINDS) conducted by The Arc (2011) shows that family caregivers play a critical role in providing supports to individuals with intellectual and developmental disabilities (IDD). Source: Research Brief: Family Caregiver Support for People with IDD | Family Support Research and Training Center This databrief describes …

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National Center on Improving Literacy

Evidence-based resources for improving outcomes for students with literacy-related disabilities, including dyslexia. About Us The National Center on Improving Literacy is a partnership among literacy experts, university researchers, and technical assistance providers, with funding from the United States Department of Education. Our Mission To increase access to, and use of, evidence-based approaches to screen, identify, …

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Developing Financial Capability Among Youth: How Families Can Help | NCWD/Youth

Developing financial capability is an important part of preparing for the transition to adulthood. Financial capability is “the capacity, based on knowledge, skills, and access, to manage financial resources effectively” (Department of the Treasury, 2010). In other words, it is the ability to make wise decisions about using and managing money. Families have an important …

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La Familia: Latino Families Strong and Stable, Despite Limited Resources | Hispanic Center

The National Research Center on Hispanic Children & Families has just released a new brief series, “La Familia: Latino Families Strong and Stable, Despite Limited Resources.” The three briefs—including the first demographic portrait of Latino fathers—take a peek into Latino family life to examine how mothers, fathers, and boys are faring.These new studies come at …

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Un/paid labor: Medicaid Home and Community Based Services waiver that pay family as personal care providers

Carli Friedman and Mary C. Rizzolo (2016) Un/Paid Labor: Medicaid Home and Community Based Services Waivers That Pay Family as Personal Care Providers. Intellectual and Developmental Disabilities: August 2016, Vol. 54, No. 4, pp. 233-244. doi: http://dx.doi.org/10.1352/1934-9556-54.4.233Correspondence concerning this article should be addressed to Carli Friedman, Disability and Human Development, University of Illinois at Chicago, …

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Individual, parent and social–environmental correlates of caregiving experiences among parents of adults with autism spectrum disorder

Burke, M. & Heller, T. (2016) Individual, parent and social–environmental correlates of caregiving experiences among parents of adults with autism spectrum disorder. Journal of Intellectual Disability Research, 60 (5), pp 401–411. doi: 10.1111/jir.12271Abstract Compared to parents of adults with other types of disabilities, parents of adults with autism spectrum disorder (ASD) experience worse well-being. Thus, …

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