Journals

National Goals Conference: Long Term Supports and Services Strand

National Goals in Research, Practice and Policy for and with People with Intellectual and Developmental Disabilities Setting a National Agenda for Long Term Supports and Services Research, Practice, and Policy In August 2015, a National Goals in Research, Policy, and Practice working meeting was held in Washington, DC to summarize the current state of knowledge …

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Practical applications of the NTG-EDSD for screening adults with intellectual disability for dementia: A German-language version feasibility study

Elisabeth L. Zeilinger, Claudia Gärtner, Matthew P. Janicki, Lucille Esralew & Germain Weber Journal of Intellectual & Developmental DisabilitiesPublished online: 23 Nov 2015http://dx.doi.org/10.3109/13668250.2015.1113238 ABSTRACT Background In this study, we evaluated the feasibility of using the German-language version of a recently developed screening tool for dementia for persons with intellectual disability (ID): the National Task Group …

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Ageing-related experiences of adults with learning disability resident in rural areas: one Australian perspective

Stuart Wark, Miranda Canon-Vanry, Peta Ryan, Rafat Hussain, Marie Knox, Meaghan Edwards, Marie Parmenter, Trevor Parmenter, Matthew Janicki, andChez Leggatt-Cook British Journal of Learning Disabilities: Special Issue: Aging and People with Learning Disabilities Volume 43, Issue 4, Pages 293–301December 2015 Summary This paper is about older people with learning disabilities who live in the country …

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Life course health and healthcare utilization among adults with spina bifida

Liptak GS, Robinson LM, Davidson PW, Dziorny A, Lavalley R, Flaherty MG, Dosa NP Developmental Medicine & Child Neurology 2015 Nov 2 Abstract AIM: To evaluate the prevalence of organ system disorders and describe healthcare utilization among adults with spina bifida at a regional clinic. METHOD: This study was a structured chart review using the …

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Caregiving and Family Support Interventions: Crossing Networks of Aging and Developmental Disabilities

Heller, T., Gibbons, H.M., & Fisher, D. (2015). Caregiving and Family Support Interventions: Crossing Networks of Aging and Developmental Disabilities. Intellectual and Developmental Disabilities, 53(5), 329–345. Abstract This scoping review addressed the following questions: (a) What types of caregiver interventions are being done in both aging and developmental disability research? (b) How are these interventions …

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Health Conditions and Functional Status in Adults with Autism: A Cross-Sectional Evaluation

Fortuna, R.J., Robinson, L., Smith, T.H., Meccarello, J., Bullen, B., Nobis, K., Davidson, P.W.J Gen Intern Med. 2015 Sep 11. http://link.springer.com/article/10.1007%2Fs11606-015-3509-x Abstract BACKGROUND: Children and adolescents with autism spectrum disorder (ASD) have many well-known health concerns, yet health conditions in adults with ASD remain poorly defined. OBJECTIVE: To examine health conditions and functional status in …

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Impact of Adulthood Stage and Social-Environmental Context on Body Mass Index and Physical Activity of Individuals With Intellectual Disability

Kelly Hsieh, Tamar Heller, Julie Bershadsky, and Sarah TaubIntellectual and Developmental Disability 2015, Vol. 53, No. 2, 100–113 Individuals with intellectual disability (ID) are at risk for obesity and physical inactivity. We analyzed a subset of 2009–2010 National Core Indicators (NCI) database to examine (1) the impact of three adulthood stages– younger (20–39 years), middle …

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Promoting Collaboration Between Hospice and Palliative Care Providers and Adult Day Services for Individuals With Intellectual and Developmental Disabilities

Corina R. Ronneberg, Lisa Peters-Beumer, Beth Marks, and Alan Factor Abstract While end-of-life issues are increasingly gaining more attention, people with intellectual and developmental disabilities (IDD) continue to receive significantly less consideration in research, education, and clinical practice compared with the general population. This is a growing concern especially since the sheer number of persons …

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